Thursday, May 19, 2011

I'll be there!

Hi!  I just wanted to let readers know that I will be attending the Rett Syndrome Conference in Boston, Memorial Day as well as the Cockayne Syndrome Conference in Orlando the July 7 -9, 2011.  Please comment, e-mail or Facebook message me if you will be attending.  We should all have lunch together!

Are you part of the organizing committee for a conference?  Let me know!


  1. Kate, I'm excited you get to attend the Rett syndrome conference! You are going to leave feeling so validated for all you do. :0)

    Wish I could join you for lunch and meet you in person...but I won't be able to go to the conference this May. Maybe another year!

    Have a great time!

  2. Good post. My friends referred me your blog. Looks like everyone knows about it, just not me, until now. Going to read your other posts. Thank you for sharing with us. Take care.

  3. Have you been to this blog yet? This family has a newly adopted child from Eastern Europe who has Cockayne syndrome. I'm sure they could use whatever information they could find!

  4. Hi,
    Really glad to hear you'll be in Boston at the Rett conference next week. Hope I'll get a chance to meet you there. I've only recently discovered this blog, and there's lots of interesting stuff. I'm in the UK, where it's harder to get access to many things that are pretty standard in the US. Would love to have the chance to meet and chat.


  5. Hello,
    I have been following this blog for several years and I have read every post. The blog up until a year ago was an extremely useful site for finding resources and advice for teaching intensive special needs.
    However now your site has regrettably degraded where you more or less leave short unremarkable posts or repeat your previous ones. In addition to filling your blog advertisments and a spam toolbar.
    It is unfortunate that you once had alot to contribute and today only seem to care about money.

  6. Well Anonymous in some ways you are right. I do post less frequently and repeat posts. However I am not making any money off this blog. Actually I make about a nickel or less a day off the google
    Adwords at the top of the blog. The ads at the bottom were an experiment, in this economy I have had to take a second job and I was hoping the ads would bring in enough revenue that I could return to more regular blogging rather that working all the time. But the ads have literally made zero money.I though the new tool bar would be helpful for folks to more easily share posts rather than
    cutting and pasting links.
    I'm sorry my blog no longer meets your high standards, especially since I have put in thousands of hours with out pay creating it. Please post the link to your blog where you do a better job at blogging.


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